6 Comments

  1. seizures are doable.i dont have the fear of THE MOMENT of falling against something.weather that be a wall following a concrete floor.you just wake up with a fat face and the afterpain that is doable.lots of different kinds of seizures.im only speaking for myself.i dont see epileptie as a dissease FOR ME,for the medication keeps me seizure free. BUT i cant watch flikkering light.had a seizure watching that.thats all.its terrible some people arent seizure free even though they take meds.feel sorry for them.i had epileptie for years without even knowing.every time i visited my dentist,he would get upset for i had alot of scarring in my mouth.and every time i visited him he would ask me…omg rose.do you bite your cheeks and tongue at night? i didnt know what he ment.i said…i dunno? Now i know i had seizures in my sleep FOR YEARS.I dont think the average dentist knows that biting the inside of your mouth maybe is an indication of having epileptic seizures.what i do know is…that for years i had several days a year that when i woke up at morning to go to work,i felt like…GAWDDDD I CANT GET UP,CANT WALK,CANT EVEN SIT.Went to work Always anyways.only wished i would of known what the problem was looking back.i hope that some people recognise the clues for biting your tongue and cheeks in your sleep severly,for dentist dont know.im about to write this info to colleges that teach dentists for i think they should know about this.funny Glenda,i just looked up dentist colleges this week to write them a letter telling my story so they can be aware of extreme injuries in peoples mouths connencting them to seizures.sorry for the long ass novel.

  2. Wonderful job, Angelo! This RN is quite impressed! Epilepsy still seems to remain stigmatized. Doing shows like this, telling your own stories.. all of this not only helps destigmatize and EDUCATE people, it also allows groups of people who deal with seizures to come together to support one another. God Bless Everyone who must deal with this. 💖

  3. I saw a post in the sidechat from someone. I took Depakote while I was pregnant. LATER after he was born I found out from another doctor it is not safe to take while pregnant. It also caused nerve damage in one of my legs from it. I now take Lyrica, Lamictal and celexa/

  4. I feel you. My parent's came in my room when I was five and I was seizing. I have temporal lobe Epilepsy. My son and I were at the Cape when he was 14 years old. We rushed him to the hospital when he had a seizure. He has Juvenile Myochlonic(sp) Epilepsy. During a seizure it feels like electricity through my brain. I have regressed from the seizures. I am glad you spoke about this. One of My first YT videos. https://www.youtube.com/watch?v=o2vQc0mWVh0

Leave a Reply

Your email address will not be published.


*